• Excitement Building Over Omnipod 5

    From _@21:1/5 to All on Mon Jul 12 10:10:17 2021
    Follow-up regarding Delaney Wade's Islit
    diagnosis in 2019:

    On Monday, June 28, 2021 at 3:29:42 PM UTC-5, _ wrote:

    _ wrote a lot, see following link for details,
    the replier including part of one sentence,
    shown below:
    https://groups.google.com/g/misc.health.diabetes/c/VROQh77bAjo/m/HpTPPHKQAAAJ

    ... improving my great Islit management success ...

    My success, HbA1c steadily under 5.7 since
    2013, time in range above 90%.

    ...

    -If- Islit was totally predictable, as if Islit indivi-
    duals had a fully functional pancreas, problem
    solved, but Islit individuals DON'T HAVE A
    FULLY FUNCTIONAL PANCREAS, and DON'T
    have any way to accurately predict all endo-
    genous activity impacting glucose levels, and ...

    ... DON'T have a way to accurately predict
    what happens when sleeping, and DON'T
    have a way to accurately predict/deal with
    glucose variation from food/drink/exogenous
    insulin basal & bolus dosages.

    -If- Islit was totally predictable, NO ISLIT indi-
    viduals would have ANY hypoglycemia and
    NO ISLIT individuals would have ANY hyper-
    glycemia.

    Problem is, without a fully functional pancreas,
    manual management of glucose levels entail-
    ing all the unpredictability factors detailed above
    and more are currently required with current state
    of the art technology. Hopefully, Omnipod 5 will
    improve on that, won't know 'til I get one.

    Two examples of unpredictability in direct quotes
    in links to comments from Islit individuals in pre-
    vious posts:

    September 13 2019 https://groups.google.com/g/misc.health.diabetes/c/TvCc9Fn5GR8/m/x7kMDSQnBQAJ

    In an article about Hannah Giffin's
    Insulinitis (Islit), near-total to total
    loss of endogenous insulin, the fol-
    lowing quote speaks to the death
    of Marie Orechoff at age 27: https://www.mpacorn.com/articles/moorpark-native-aims-to-strike-out-type-1-diabetes-with-bowling-fundraiser/

    Quote [with clarifying insert, not
    part of original quote, included
    in brackets]:

    "This year’s Bowling for a Cure,
    set for Sat., Sept. 14 at Harley’s
    Bowl in Simi Valley, will be dedi-
    cated to the memory of Marie Ore-
    choff.

    Orechoff, a 27-year-old Moorpark
    native, lost her life this summer
    to Type 1 diabetes [Islit].

    “She did nothing wrong. She was
    living her life and managing her
    disease, but this disease is

    unpredictable

    and no matter how hard we try,
    things happen that are outside of
    our control,” Giffin said. “This
    could happen to anyone. Stories
    like Marie’s rarely get shared,
    but this is our reality.”

    ~~~

    June 24 2021 https://groups.google.com/g/misc.health.diabetes/c/T3kLnEXiYkE/m/8NZkskCfBgAJ

    https://www.wbir.com/article/news/local/five-at-four/teenage-crossfit-athlete-battles-type-1-diabetes-inspires-others/51-11be50be-5543-4b99-80af-0916d666ac39

    Delaney Wade ... agrees with my perspective on
    Islit unpredictability as indicated in the following
    quote / excerpt:

    "... It's a roller coaster, to be honest. My sugars,
    they'll be low, high, good, and it can be up and
    down, but it's not like a bad roller coaster," Wade
    said. "You just can't really predict it. It's really not
    predictable." ...

    - - -
    July 11 2021

    Putting in the Work: 15-Year-Old
    Delaney Wade Manages Islit https://morningchalkup.com/2021/07/11/putting-in-the-work-15-year-old-delaney-wade-manages-type-1-diabetes-qualifies-for-the-crossfit-games-teen-division/
    - - -

    ... In 2019, Wade finally went to the doctors and
    was diagnosed with Type 1 Diabetes [Islit]. That
    day, her blood sugar levels were in the high 600s,
    which, according to her doctor, should have landed
    her in the ICU.

    ... “It’s a rollercoaster,” adds Bruce (Delaney's dad).
    “Trying to pattern it and track it, and we’ve done well
    considering, but trying to understand what causes
    highs, what causes lows… we know carbs cause
    highs, but if you’re lifting heavy, at a slower pace, ...

    ... then you tend to go up. If you are doing a lot more
    cardio, fast-paced stuff, it tends to fall.”

    ~~~

    Another recent post with extensive elaboration
    about Islit unpredictability, from Courtney Pitson,
    who's had Islit since age 2, for the last 21 years: https://groups.google.com/g/misc.health.diabetes/c/rrCAgX5qr04/m/X54QFB2bAQAJ

    ... “There’s a projected idea that being [an Islit indivi-
    dual] is okay, that it’s not that hard, but it’s actually
    really hard. I wish that people knew how hard it is
    and how it really does change your life forever.”


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