• New data shows burden of dementia sympto

    From ScienceDaily@1:317/3 to All on Wed Apr 27 22:30:48 2022
    New data shows burden of dementia symptoms just as high in community population as nursing home residents
    Statistics indicate possible benefit of home-based palliative care interventions

    Date:
    April 27, 2022
    Source:
    Regenstrief Institute
    Summary:
    New data shows that the symptoms suffered by people with advanced
    Alzheimer's disease and related dementias who live in the community
    occur at a strikingly similar rate to those of dementia patients
    in a nursing home.



    FULL STORY ==========================================================================
    New data shows that the symptoms suffered by people with advanced
    Alzheimer's disease and related dementias who live in the community occur
    at a strikingly similar rate to those of dementia patients in a nursing
    home. The study from Regenstrief Institute and Indiana University School
    of Medicine is one of the first to look at dementia symptom prevalence
    in the community population.


    ========================================================================== Dementia currently affects about 5 million older adults in the U.S.,
    and its incidence is expected to more than double over the next 40
    years. More than 21 million people in the U.S. are providing unpaid
    care for someone living with dementia. Because there is no cure for the disease, the goal is to manage dementia symptoms to alleviate patient discomfort and reduce caregiver burden.

    Researchers took baseline survey data from a five-year randomized
    clinical trial funded by the National Institute on Aging named IN-PEACE (Indiana Palliative Excellence in Alzheimer's Care Efforts) and analyzed responses from caregivers regarding symptoms.

    The most common symptoms include:
    * Pain * Agitation * Anxiety * Resistance to care
    "We found that both the rate and types of symptoms suffered by community- dwelling people with dementia were very similar to those in a nursing
    home setting," said first author Kurt Kroenke, M.D., Regenstrief research scientist and professor of medicine at IU School of Medicine.

    "More than 40 percent of these people were experiencing these symptoms
    at least weekly. The symptoms are not subtle, they are not infrequent,
    and they do have a significant impact on the quality of life for patients
    and caregivers," Dr.

    Kroenke continued. "However, they often go unreported in primary care
    settings.

    It's an area that requires more attention during routine care."
    Regenstrief and IU School of Medicine researchers and clinicians are
    attempting to address this issue with palliative care interventions
    through the IN-PEACE trial. They are testing a collaborative care model
    using nurses and community health workers to help manage symptoms and
    provide caregivers with support.

    "These baseline numbers will help us to see if palliative care
    eases the symptom burden," said senior author Greg Sachs, M.D.,
    a Regenstrief research scientist and a professor of medicine at IU
    School of Medicine. "While we gather data from the clinical trial,
    this initial information shows the need for providers to make room for
    symptom discussion in primary care." A unique aspect of IN-PEACE: more
    than 40 percent of enrolled subjects are Black. Dementia clinical trials
    often have 10 percent or a smaller proportion of subjects who are Black.

    "Prevalence and Predictors of Symptoms in Persons with Advanced Dementia
    Living in the Community" is published online ahead of print in the
    Journal of Palliative Medicine. This research was supported by the
    National Institutes of Health's National Institute on Aging, R01 award
    (R01 AG057733).

    In addition to Drs. Kroenke and Sachs, authors are Sujuan Gao, PhD of
    IU School of Medicine; Kelly M. Mosesso, M.A. of IU School of Medicine;
    Susan Hickman, PhD of Regenstrief Institute and Indiana University School
    of Nursing; Laura R.

    Holtz, M.S. of Regenstrief, Alexia M. Torke. M.D., M.S. of Regenstrief and
    IU School of Medicine and Nina M. Johnson, B.S. of Regenstrief Institute.


    ========================================================================== Story Source: Materials provided by Regenstrief_Institute. Note: Content
    may be edited for style and length.


    ========================================================================== Journal Reference:
    1. Kurt Kroenke, Sujuan Gao, Kelly M. Mosesso, Susan E. Hickman,
    Laura R.

    Holtz, Alexia M. Torke, Nina M. Johnson, Greg A. Sachs. Prevalence
    and Predictors of Symptoms in Persons with Advanced Dementia
    Living in the Community. Journal of Palliative Medicine, 2022;
    DOI: 10.1089/ jpm.2021.0402 ==========================================================================

    Link to news story: https://www.sciencedaily.com/releases/2022/04/220427100600.htm

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